Abstract
Introduction: The Leonetti law draws the legislative framework for the medical handling of end of life cases. The aim of this work was to assess the knowledge of the various notions pertaining to this law and to measure the rate of exposure to such cases and their impact on nurses and doctors of Fire Brigade of Paris (Brigade de sapeurs-pompiers de Paris - BSPP) operating in pre-hospital emergency medicine.
Materials and Methods: An anonymous questionnaire was designed and shared with medical and paramedical staff of a pre-hospital emergency medicine department in order to explore the exposure of the staff to end of life situations, their impact on them and the training received or desired to handle such cases.
Results: From 01/01/2009 to 01/04/2009, 36 questionnaires (72% exhaustiveness) were collected and analyzed. The mean age of the respondents was 36 ± 6 years and 86% of them were men. The mean duration of practice at the pre-hospital emergency medicine departments was 8 ± 6 years. Results have shown that during their clinical practice, 94% of subjects had already been exposed to violent death and 97% to end of life care. Eighty-six percent of subjects reported discouragement due to end of life care and only 18% due to violent death. Twenty-five percent reported a professional impact and/or extraprofessional impact. Seventy-five percent declared the need to talk about these situations and 88% were able to do so with members of the pre hospital medical team who were present during the intervention or other medical colleagues. Seventy-five percent declared to know the concept of “trusted person” whilst 47% only declared to know the concept of “advance directives”. Eighty three percent thought that the concept of Trusted Person should be taken into consideration in pre-hospital Emergency medicine versus 69% who thought that “advance directives” should be taken into consideration in pre-hospital Emergency medicine. Seventy-two percent declared not having received any training and wished to be better prepared for the management of such situations. An initial and/or continuous training was viewed as necessary in the form of “seminars” or “Education from personal experiences”.
Discussion: “End of Life” situations are inevitable in pre hospital emergency medicine and bear a significant psychological impact. A good knowledge of the “trusted person” and “advance directives” concepts could facilitate the handling of such situations. The training that is most preferred ought to be integrated in every pre-hospital emergency medicine institution. This topic warrants a larger survey of a larger number of staff.
References
Leonetti J. Loi relative aux droits des malades et à la fin de vie. 2005. On line 22/04/2005: www.assemblee-nationale.fr/13/pdf/rap-info/i1287-t1.pdf
Objectifs pédagogiques terminaux pour les items de la 2ème partie du 2ème cycle des études médicales bulletin officiel numéro 31 du 30/08/2001. On line 31/08/2001: www.education.gouv.fr/bo/2001/31/sup.htm
Assemblée nationale. Texte 358 - Art. L. 1111-11. Code de la santé publique 2004. On line 30/11/2004: www.assemblee-nationale.fr/12/pdf/ta/ta0358.pdf
Laroque G. Rapport de Madame Geneviève Laroque. 1986. On line 26/08/1986: www.senat.fr/rap/r98-207/r98-2074.html
Delbecque H. Rapport d’informations sur les soins palliatifs et l’accompagnement. 1993. On line 01/01/1993: www.senat.fr/rap/r98-207/r98- 207_mono.html
Denisier D. Rapport de Monsieur Donat Denisier. 1999. On line 24/02/1999: www.ladocumentationfrancaise.fr/var/storage/rapports- publics/994000301/0000.pdf
Neuwirth L. Rapport de Monsieur Lucien Neuwirth. 2000. On line 25/10/2000: www.senat.fr/rap/l00-049/l00-0491.pdf
Loi du 09 juin 1999. On line 09/06/1999: http://legifrance.gouv.fr/affichTexte.do?cidTexte=JORFTEXT000000212121
Kouchner B, ministère de l’emploi et de la solidarité, ministère délégué à la santé. Programme de lute contre la douleur 2002-2005. 2002. On line 01/03/2002: www.cnrd.fr/IMG/pdf/programme_lutte_douleur_2002-05.pdf
Ferrand E, Robert R, Ingrand P, Lemaire F. Withholding and withdrawal of life support in intensive-care units in France: a prospective survey. French LATAREA Group. Lancet 2001; 357:9-14.
Pochard F, Azoulay E, Chevret S, Vinsonneau C, Grassin M, Lemaire F, et al. French intensivists do not apply American recommendations regarding decisions to forgo life-sustaining therapy. Crit care med 2001; 29:1887-92.
Mattei JF. Extraits de la lettre de Jean François Mattei à Madame Marie de Hennezel. 2002. On line 21/10/2003: http://www.ladocumentationfrancaise. fr/var/storage/rapports-publics/034000617/0000.pdf
Hennezel M. Rapport de la mission «fin de vie et accompagnement». 2003. On line 21/10/2003: http://www.ladocumentationfrancaise.fr/var/ storage/rapports-publics/034000617/0000.pdf
Société Française d’Anesthésie Réanimation. Recommandations de bonnes pratiques cliniques concernant l’application de la loi n°2005-370 du 22 / 04 / 2005. On line 15/04/2015: www.sfar.org/_docs/articles/122-recosfdv0606.pdf.
Société de Réanimation de Langue Française. Limitation et arrêt de thérapeutique(s) active(s) en réanimation adulte. 2002. On line 01/06/2002: http://www.srlf.org/rc/org/srlf/htm/Article/2011/20110907-224803-887/src/htm_fullText/fr/2002_recommandation_SRLF_Limitations_et_arrets_de_ therapeutique(s)_active(s)_en_reanimation_adulte.pdf
Assemblée Nationale. Réforme des études de médecine : nouvel internat pour tous les futurs médecins 2001. On line 09/05/2001: http://www. senat.fr/seances/s200105/s20010509/sc20010509046.html
Loi du 04/03/2002 relative aux droits des malades. On line 04/03/2002: http://www.legifrance.gouv.fr/affichTexte.do?cidTexte=JORFTE XT000000227015
Société de Réanimation de Langue Française. Limitation et arrêt des traitements en réanimation adulte. 2009. On line 01/01/2009: http://www. srlf.org/data/ModuleGestionDeContenu/application/816.pdf
Redinbaugh E, Sullivan A, Block S, Gadmer N, Lakoma M, Mitchell A, et al. Doctors’ emotional reactions to recent death of a patient: cross sectional study of hospital doctors. BMJ 2003; 327:185.
Gold KJ, Kuznia AL, Hayward RA. How physicians cope with stillbirth or neonatal death: a national survey of obstetricians. Obstet Gynecol 2008; 112:29-34.
Moryl N, Coyle N, Foley K. Managing an acute pain crisis in a patient with advanced cancer: “this is as much of a crisis as a code”. JAMA 2008; 299:1457-67.
Curtis J, Yarnold P, Schwartz D, Weinstein R, Bennett C. Improvements in outcomes of acute respiratory failure for patients with human immunodeficiency virus-related Pneumocystis carinii pneumonia. Am J Respir Crit Care Med 2000; 162:393-8.
Maslach C, Leiter MP, Schaufeli WB. Measuring burnout. In C. L. Cooper & S. Cartwright (Eds.), The Oxford handbook of organizational well- being 2009 (86-108). Oxford UK: Oxford University Press.
Embriaco N, Azoulay E, Barrau K, Kentish N, Pochard F, Loundou A, et al. High level of burnout in intensivists: prevalence and associated factors. Am J Respir Crit Care Med 2007; 175:686-92.
Poncet M, Toullic P, Papazian L, Kentish-Barnes N, Timsit J, Pochard F, et al. Burnout syndrome in critical care nursing staff. Am J Respir Crit Care Med 2007; 175:698-704.
Prendergast T, Luce J. Increasing incidence of withholding and withdrawal of life support from the critically ill. Am J Respir Crit Care Med 1997; 155:15-20.
Intervention de Monsieur Jean François Mattei, Ministre de la santé, de la famille et des personnes handicapées. 2002. On line 08/10/2002 : www. sante.gouv.fr/IMG/pdf/Colloque_081002_discours_ouverture.pdf